Earlier this year, Noah officially graduated from James Hopkins Trust as he celebrated his 12th birthday. Having had received respite from us at James Hopkins Trust since he was just six months old, his story is a powerful reminder of the depth and duration of...
Full Term February There's a common misconception that all babies born needing neonatal care are premature, but 60% are born at full term and sick. February is Full Term Awareness Month, a chance to raise awareness of babies born full term and sick. You may never...
Join us for a fun stroll down memory lane to relive all the awesome shenanigans and celebrations we've had in 2024 at Kites Corner! [video width="1920" height="1080"...
Joseph’s story is one of perseverance, resilience, and love. This blog post explores Joseph’s medical journey, his diagnosis of GNAO1, and the crucial support his family receives from us here at the James Hopkins Trust. Written beautifully from Mum, Christine's,...
We at James Hopkins Trust recognise that for families with a severely disabled, life-threatened, or life-limited child, as well as for those grieving the loss of a beloved child, Christmas can be a deeply emotional time. While the season is meant to bring joy, it...
Pets as Therapy and James Hopkins Trust It's arguable that some of the most unsung heroes in our world are animals. Whether that be a cat, dog, pony, or bearded dragon, the unconditional love of an animal can bring a wealth of therapeutic benefits to the children...
Despite an uneventful first pregnancy, for Sarah and Martin, their second was very different. At 12 weeks, it was suspected that the pregnancy may not be viable due to measurements being significantly behind for the gestational age. The obstetrician suspected a...
Mirakel's Story Early in Samantha’s pregnancy, a scan suggested that sadly, her pregnancy wasn’t viable, and was told to expect a miscarriage. A week later, another scan confirmed no heartbeat. At this point Samantha was advised to wait two weeks for her body to...
Accessible Days Out in Gloucestershire We understand how difficult it is to plan and enjoy a family day out, especially when you have a disabled child (or any other family member, of course). So much needs to be considered to decide whether or not it is going to be...
So Much More Than Health Care At James Hopkins Trust, we are often perceived as somewhat of an enigma by the organisations that regulate and fund us. Are we Early Years childcare (Ofsted) or perhaps a hospice with health and nursing care (CQC)? The reality is that...
The Importance of Routine It’s likely that many of us have some sort of routine, from a work routine, bedtime routine, or even a skincare routine. Routine is important to us all in different ways and for many reasons. In a nutshell, routine can help us with…...
1. They are a child. Being a child should come before their disability. Many fail to look beyond the wheelchair, NG tube and various other equipment. They fail to acknowledge that underneath all of that lies a child, a child that finds silly things funny, enjoys...
This National Siblings Day, we’d like to take the time to celebrate the amazing siblings of our JHT children. We recognise that these children have had no choice but to help their parents care for their medically fragile brother or sister thus making them young...
It is a common misconception that respite simply ‘provides families with a break’. Whilst there is some truth to that statement, many parents who care for children with life-threatening or life-limiting illness will tell you they seldom get a break. However, those...