Despite an uneventful first pregnancy, for Sarah and Martin, their second was very different. At 12 weeks, it was suspected that the pregnancy may not be viable due to measurements being significantly behind for the gestational age. The obstetrician suspected a...
Mirakel's Story Early in Samantha’s pregnancy, a scan suggested that sadly, her pregnancy wasn’t viable, and was told to expect a miscarriage. A week later, another scan confirmed no heartbeat. At this point Samantha was advised to wait two weeks for her body to...
Accessible Days Out in Gloucestershire We understand how difficult it is to plan and enjoy a family day out, especially when you have a disabled child (or any other family member, of course). So much needs to be considered to decide whether or not it is going to be...
So Much More Than Health Care At James Hopkins Trust, we are often perceived as somewhat of an enigma by the organisations that regulate and fund us. Are we Early Years childcare (Ofsted) or perhaps a hospice with health and nursing care (CQC)? The reality is that...
The Importance of Routine It’s likely that many of us have some sort of routine, from a work routine, bedtime routine, or even a skincare routine. Routine is important to us all in different ways and for many reasons. In a nutshell, routine can help us with…...
1. They are a child. Being a child should come before their disability. Many fail to look beyond the wheelchair, NG tube and various other equipment. They fail to acknowledge that underneath all of that lies a child, a child that finds silly things funny, enjoys...
This National Siblings Day, we’d like to take the time to celebrate the amazing siblings of our JHT children. We recognise that these children have had no choice but to help their parents care for their medically fragile brother or sister thus making them young...
It is a common misconception that respite simply ‘provides families with a break’. Whilst there is some truth to that statement, many parents who care for children with life-threatening or life-limiting illness will tell you they seldom get a break. However, those...