Refer a Child


James Hopkins Trust provides care and support for children and babies with a broad range of health conditions who have nursing needs and are not expected to live beyond early adulthood, this includes:

  • Children and babies with life-limiting diagnoses
  • Children and babies without clear diagnoses but who have health vulnerabilities that mean they are not expected to survive to adulthood
  • Children or babies with cancer or organ failure if their prognosis is poor

Although James Hopkins Trust’s services are free to the families we support, as a registered charity with minimal statutory funding, our service provision is dependent on the voluntary income we raise as an Organisation and our current resources available.


Who can make a referral to James Hopkins Trust?

We welcome referrals from family members or professionals. Before making a referral, we would expect referrers to have been open with the family about the role of James Hopkins Trust in supporting life-limited or life-threatened young children and babies and to gain the families permission to make a referral.

Families should also be aware that all cases are reviewed annually and that during periods of stability, a child or baby may be deferred, and can be re-referred if their health deteriorates/nursing needs increase in the future.

The support provided is completely free of charge to the child and family; it will be tailored to the needs of the individual child/baby who must be aged under 6 and living in Gloucestershire.

What happens after the referral is made?

When we receive an application, a member of the Nursing Management Team will contact the family and arrange a convenient time to meet the child and family, this will usually be at the family home. During this primary assessment we will discuss every aspect of the child’s condition and the effects this has on both the child and the family. We will discuss the type of respite care we can provide and explain that the primary assessment is used to establish which type of respite they may be eligible for.

Families may be eligible for:

  • One to one respite once a week either at home or in the respite centre.
  • A weekly Little Kites daytime session at our respite centre
  • Overnight respite at our respite centre.
  • Use of the facilities at Kites Corner

See here for more information on each type of respite.

Our aim is to be able to make initial contact with a family and have respite in place within two months of the application. If you would like to make a referral, please download our referral form and email it to or post it to: James Hopkins Trust, Kites Corner, North Upton Lane, Barnwood, Gloucester, GL4 3TR.

Skip to content