Tommy’s Story

Tommy has been with JHT since he was diagnosed at 9 months. He is now 5. This year Tommy graduated from his little Kites sessions as he was starting his next chapter at ‘big boy school’. I was distraught. After so many years of Tommy AND I being wrapped in love and care by the JHT team – I was really fearful that we would go back to that isolated and lost feeling that I know many JHT families will have experienced.

But we didn’t! Although we don’t get to go to little Kites weekly, Tommy has overnight stays and absolutely phenomenal holiday club play times. He beams when he knows he is going and comes out of each session bursting with joy. I know the team and these sessions make his heart full. I can honestly say that we still feel as cared for and thought about as we did when we were there weekly.

JHT families are often faced with some incredibly tough challenges – these challenges are often easier to overcome when we have a team of people in our corner willing us on. I should never have worried about that feeling of isolation creeping back. Once a JHT family member- always a JHT family member.

I am so thankful they exist for my family and all the other families like us.

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