Hi, I’m Matylda and I’m two!
I live with Mummy & Daddy and I am very lucky to have three big sisters! When I was born the doctors could see from looking at me that I may have a genetic condition and they would like to do some tests to see what it was. This was an uncertain time for my Mummy and Daddy, I struggled to feed, was losing weight and was admitted to hospital a few times. When I was two months old I needed to have a feeding tube fitted up my nose so I could get all the fluid and nutrients I needed. I vomited often so needed to be kept safe from choking. I had physiotherapy to try and strengthen my muscles as I was quite floppy and struggled to hold my head up. When I was 10 months old I needed another operation to stop my vomiting and to have a permanent feeding tube put in my tummy.
Mummy and Daddy spoke to James Hopkins Trust and asked if they would be able to help them so that they could share their time with my sisters and just catch their breath. A nice nurse came and met me and said they would love to have me come and play with them (well of course they would, I’m a lot of fun to spend time with!!) I come to James Hopkins Trust and have so much fun with my friends while I have lots of nursing staff making sure all my nursing needs are taken care of. I have made some lovely friends and look forward to our time together, we do lots of baking, art work and music therapy. The best bit is the sleep overs I have with the other children at the Trust, where we get to share a bedroom, have Jacuzzi baths and have THE BEST time ever!