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Respite   

What is it - and how does it work?

On this website and inside every edition of our newsletters, we always state our AIMS and objectives to remind our supporters exactly what we do, and to inform newcomers who may be unsure. But how does our principal objective - respite care - actually work so successfully for so many families?

If you are interested in seeing what Respite is, then we now have a short DVD which we can send you. This shows a bit about Kite's Corner and some short interviews with parent users. If you would like a copy phone our office on (01452) 612 216

The first step is to receive one our James Hopkins Trust APPLICATION FORMS from the parents supported by professional medical opinion. We currently  have  52 children receiving  over 1000 hours per month ongoing free respite care in the family home and over 450 hours per month of daycare support in Kite's Corner

Our forms are in all 90 General Practices through the county, as well as in Social Services offices, with Health visitors and, of course, in the children's wards and special baby units at Gloucestershire Royal and Cheltenham General Hospitals. Having received the form our Nursing Co-ordinator contacts the family to arrange for a family visit, in order to assess the needs and the level of nursing care required.

Once this has been done, reports are then presented to our Applications Sub-Committee which meets every six weeks, although emergency cases can be dealt with immediately. Each case is treated strictly on its own merits, and if the level of disability falls within our Charitable remit, sessions of respite care are allocated according to need.

Parents are then informed by letter of the exact package of care, and a suitably qualified nurse is carefully selected from our James Hopkins Trust Bank, currently standing at around 30 all over the county. Wherever possible the nurse will be geographically close to each child's home. After a preliminary "get-to-know" visit, the nurse thus assigned remains with the same child and family on a regular basis, normally weekly, by day or by night. Therefore, over a period of time sometimes lasting for years, a special bond of trust and stability evolves with each child, whilst the parents can better cope with their own caring, safe in the knowledge that the respite programme is tailored to their own needs, in its frequency and flexibility, carried out by a qualified professional. If there is a crisis, care can be increased, if the situation improves, care can be adjusted accordingly.

To this end, all cases are kept under review by the Nursing Co-ordinator either by further family visits, or simply by a friendly telephone call to parents or nurses. All of our services are free to all in the county, and our nurses, in turn, are paid a professional hourly rate. Most of our respite care takes place in the family home, but increasingly, use is being made of our facilities at Kite's Corner, which the nurse and child may use as an alternative, taking advantage of our day room, therapy room or  multi sensory rooms. Families can also use Kite's Corner as a drop-in centre or use the facilities during one of our organised playgroups.

 

If you know of anyone that would benefit from this help then please contact us   (Tel: 01452 612 216)

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